Satisfaction with a new patient education program for children, adolescents, and young adults with differences of sex development (DSD) and their parents.

ABSTRACT:

Objective

Evaluation of the participant satisfaction with a newly developed interdisciplinary, modular education program for children, adolescents, and young adults with differences of sex development (DSD) and their parents.

Methods

The two-day program including tailored medical information, peer consultation and psychological support aimed to improve diagnosis-specific knowledge and empowerment. Post-training satisfaction was measured using an adapted ZUF-8 questionnaire, scoring from 5 (worst) to a maximum of 26 (best) for persons aged 6-17 and from 10 to 40 points for adults, including 2 open-ended questions.

Results

The questionnaire, completed by 89 children (6-13 years), 92 adolescents (14-17 years), 47 young adults (18-24 years), and 345 parents, revealed cons

SUBMITTER: Wiegmann S 

PROVIDER: S-EPMC11299555 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature