Assessing disparities through missing race and ethnicity data: results from a juvenile arthritis registry.

ABSTRACT:

Introduction

Ensuring high-quality race and ethnicity data within the electronic health record (EHR) and across linked systems, such as patient registries, is necessary to achieving the goal of inclusion of racial and ethnic minorities in scientific research and detecting disparities associated with race and ethnicity. The project goal was to improve race and ethnicity data completion within the Pediatric Rheumatology Care Outcomes Improvement Network and assess impact of improved data completion on conclusions drawn from the registry.

Methods

This is a mixed-methods quality improvement study that consisted of five parts, as follows: (1) Identifying baseline missing race and ethnicity data, (2) Surveying current collection and entry, (3) Completing data through audit and fee

SUBMITTER: Banschbach KM 

PROVIDER: S-EPMC11303283 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature