Willingness to participate in a personalized health cohort - insights from the swiss health study pilot phase.

ABSTRACT:

Background

This paper explores the feasibility of establishing a large-scale population-based cohort and biobank in Switzerland by assessing potential participants' needs, expectations, and concerns about such an infrastructure providing information on health, lifestyle, and exposure trajectories, the development of disease, and risk factors over time.

Methods

We utilized a scenario-based questionnaire in the Swiss Health Study pilot phase (2020-2021), involving 1349 adults aged 20-69 from the cantons Vaud and Bern. We conducted descriptive statistics supported by R and qualitative content analysis of n = 374 open responses related to attitudes towards research.

Results

We highlight the benefits and challenges of the scenario-based approach, discuss the sample represe

SUBMITTER: Buhler N 

PROVIDER: S-EPMC11305038 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature