Blind to the perils of pursuing food: Behaviors of individuals with Smith-Magenis Syndrome.

ABSTRACT:

Purpose

Discrepancies exist between the need to lock food away and satiety scores in the Smith-Magenis syndrome (SMS) population. This study sought to uncover food-related behaviors within this unique group of individuals.

Methods

Caregivers (N = 24) representing 21 individuals with SMS, recruited from the Parents and Researchers Interested in SMS national meeting and social media platforms, participated in semistructured interviews. Interviews were digitally recorded, transcribed verbatim, coded, and analyzed using hybrid thematic analysis.

Results

This study identified a global theme of "Blind to the perils while pursuing their goals," supported by 5 organizing themes: (1) Biology-impacting behaviors, (2) Need for personalized strategies, (3) Controlling food

SUBMITTER: Elatrash C 

PROVIDER: S-EPMC11309085 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature