The role of patient-reported experiences in disclosing genetic prenatal testing: Findings from a large-scale survey on pregnant women.

ABSTRACT:

Introduction

Pregnant women can choose from different prenatal genetic tests throughout their maternity journey. We aim to investigate the clinical, societal, and economic determinants influencing the selection of different options (non-invasive, invasive, or both).

Methods

A systematic survey focusing on maternity pathways was launched by the Region of Tuscany, Italy, to collect data on pregnant women's experience, outcomes and satisfaction levels. Drawing from this survey, we retrospectively analyzed data on women who filled out the second-trimester questionnaire between March 2019 and February 2023 (n = 27,337), providing complete data on relevant variables. Logistic regression models were applied to identify the factors contributing to a higher likelihood of opting for n

SUBMITTER: Ferrari A 

PROVIDER: S-EPMC11315116 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature