Population-based study of rare epilepsy incidence in a US urban population.

ABSTRACT:

Objective

This study was undertaken to estimate incidence of rare epilepsies and compare with literature.

Methods

We used electronic health record text search to identify children with 28 rare epilepsies in New York City (2010-2014). We estimated cumulative incidence and compared with literature.

Results

Eight of 28 rare epilepsies had five or more prior estimates, and our measurements were within the published range for all. The most common were infantile epileptic spasms syndrome (1 in 2920 live births), Lennox-Gastaut syndrome (1 in 9690), and seizures associated with tuberous sclerosis complex (1 in 14 300). Fifteen of 28 had fewer than five prior estimates, and of these, we provided additional estimates for early infantile developmental and epileptic encephalopat

SUBMITTER: Barbour K 

PROVIDER: S-EPMC11315636 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature