Unveiling the invisible: a qualitative interview study on the impact of young onset Parkinson's disease on (ex-partners).

ABSTRACT:

Introduction

Living with young onset Parkinson's disease (YOPD) not only affects the persons with YOPD, but also their families. Although caregiver burden has been researched in Parkinson's disease in general, little is known about the specific impact of having an (ex-)partner with YOPD. This exploratory study aimed to explore the impact of having an (ex-)partner with YOPD on daily life.

Materials and methods

We used a qualitative approach including semi-structured interviews with 16 (ex-)partners of people with YOPD. Interviews were audio-taped and transcribed verbatim. Qualitative thematic analysis was used to analyze the interview data.

Results

Qualitative analysis revealed nine themes to describe the impact of having an (ex-)partner with YOPD: (1) Psychosocial imp

SUBMITTER: Kapelle WM 

PROVIDER: S-EPMC11319367 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature