Parent experiences of the esophageal atresia journey during the early post-natal period: results from a support group perspective.

ABSTRACT: Surgically repaired esophageal atresia (EA) is associated with chronic esophageal and respiratory morbidity that require ongoing management. The care of chronically ill children can exert considerable stress on parents, thereby potentially affecting their mental well-being. In response to this, disease-specific support groups have emerged with the aim to bring together individuals facing similar challenges, facilitating the exchange of experiences within a nurturing environment, and providing essential emotional support. In the context of this international collaborative study, we investigated the role played by EA-specific support groups in promoting the emotional well-being of EA families. An anonymous online survey was distributed through a network comprising 12 international EA support

SUBMITTER: de Vos C 

PROVIDER: S-EPMC11322197 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature