Genetics healthcare providers' experiences counseling patients with results from consumer genomic testing.

ABSTRACT:

Background

Consumer genomic testing (CGT), including direct-to-consumer and consumer-initiated testing, is increasingly widespread yet has limited regulatory oversight. To assess the current state, we surveyed genetics healthcare providers' experiences with CGT.

Methods

A retrospective survey about experiences counseling on CGT results was completed by 139 respondents recruited from the National Society of Genetic Counselors, Clinical Cancer Genomics Community of Practice, and genetics professional societies.

Results

Among respondents, 41% disagreed with the statement that potential benefits of CGT outweigh harms, 21% agreed, and 38% were undecided. A total of 94% encountered ≥1 challenge counseling CGT patients, including adverse psychosocial events (76%), incorrect

SUBMITTER: Trottier M 

PROVIDER: S-EPMC11322993 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature