Primary care professionals' views on population-based expanded carrier screening: an online focus group study.

ABSTRACT:

Background

Population-based expanded carrier screening (ECS) involves screening for multiple recessive diseases offered to all couples considering a pregnancy or during pregnancy. Previous research indicates that in some countries primary care professionals are perceived as suitable providers for ECS. However, little is known about their perspectives. We therefore aimed to explore primary care professionals' views on population-based ECS.

Methods

Four online focus groups with 14 general practitioners (GPs) and 16 community midwives were conducted in the Netherlands.

Results

Our findings highlight various perspectives on the desirability of population-based ECS. Participants agreed that ECS could enhance reproductive autonomy and thereby prevent suffering of the child

SUBMITTER: van den Heuvel LM 

PROVIDER: S-EPMC11324326 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature