The experience of hope in dyads living with advanced chronic illness in Portugal: a longitudinal mixed-methods study.

ABSTRACT:

Background

Hope is an important resource that helps patients and families thrive during difficult times. Although several studies have highlighted the importance of hope in different contexts, its specific manifestations in the realm of advanced chronic illness need further exploration. In this study, we sought to elucidate the intricate interplay between the construct of hope and the lived experience of advanced chronic illness within patient-caregiver dyads. Our objectives were (a) to explore the dyadic experience of hope as a changing dynamic over time for patients living with advanced chronic illness and their informal caregivers and (b) to evaluate variations of hope and symptom burden across time.

Methods

We conducted a longitudinal mixed-methods study with a convergen

SUBMITTER: Befecadu FBP 

PROVIDER: S-EPMC11325565 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature