Dilemma in patients with amyotrophic lateral sclerosis and expectations from brain-machine interfaces.

ABSTRACT:

Objective

We hypothesized that patients with amyotrophic lateral sclerosis (ALS) face a dilemma between motivation to live and difficulty in living, and brain-machine interfaces (BMIs) can reduce this dilemma. This study aimed to investigate the present situation of patients with ALS and their expectations from BMIs.

Materials and methods

Our survey design consisted of an anonymous mail-in questionnaire comprising questions regarding the use of tracheostomy positive pressure ventilation (TPPV), motivation to live, anxiety about the totally locked-in state (TLS), anxiety about caregiver burden, and expectations regarding the use of BMI. Primary outcomes were scores for motivation to live and anxiety about caregiver burden and the TLS. Outcomes were evaluated using the visual

SUBMITTER: Nakamura T 

PROVIDER: S-EPMC11328597 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature