Palliative care needs and utilisation of specialist services for people diagnosed with motor neuron disease: a national population-based study.

ABSTRACT:

Introduction

There is a growing emphasis on the importance of the availability of specialist palliative care for people with motor neuron disease (MND). However, the palliative care needs of this population and the utilisation of different specialist services remain poorly defined.

Objectives

To (1) describe clinical characteristics, symptom burden and functional levels of patients dying with MND on their admission to palliative care services; (2) determine factors associated with receiving inpatient or community palliative care services.

Design

An observational study based on point-of-care assessment data from the Australian Palliative Care Outcomes Collaboration.

Participants

A total of 1308 patients who received palliative care principally because of MND bet

SUBMITTER: Bai W 

PROVIDER: S-EPMC11331903 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature