The psychological effects of research participation on people with dementia: findings from a German exploratory interview study.

ABSTRACT: The German National Dementia Strategy aims to engage people with dementia in research projects. However, the effects of such research participation on experience and behavior have been insufficiently explored. This study aimed to investigate the psychological effect of research participation on people living with dementia. In a qualitative, exploratory approach, guideline-based interviews were conducted with four persons with dementia who had served as co-researchers on an advisory board in a health services research study for 8 months at that time. The analysis revealed predominantly positive effects of research participation at all levels of experience and behavior. Most effects were reported by the co-researchers on a cognitive level. Both the perception of being competent and of making

SUBMITTER: Seidel K 

PROVIDER: S-EPMC11335729 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature