Patient and carer perceptions of video, telephone and in-person clinics for Phenylketonuria (PKU).

ABSTRACT:

Background

In phenylketonuria (PKU), attending multidisciplinary clinic reviews is an important aspect of life-long care. Since the COVID-19 pandemic, video and telephone clinics are used as alternative methods for people with PKU to have contact with their care team. There is limited research concerning patient preference, experience and perceptions of alternative types of clinic review. Individuals from the UK with PKU and their caregivers were invited to complete an online questionnaire, hosted on the National Society for PKU (NSPKU) website and social media platform.

Results

Data was available from 203 respondents. Forty one per cent of respondents (n = 49/119) preferred in-person clinics; 41% (n = 49) a hybrid of in-person, video and telephone clinics; 9% (n = 11) video

SUBMITTER: McBride H 

PROVIDER: S-EPMC11337755 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature