Self-Reported Well-Being of Family Caregivers of Children with Medical Complexity.

ABSTRACT:

Objective

Provide an in-depth and psychometrically rigorous profile of the emotional well-being and sleep-related health of family caregivers of children with medical complexity (CMC).

Methods

Cross-sectional survey study of family caregivers of CMC receiving care from a pediatric complex care center between May 2021 and March 2022. Patient Reported Outcomes Measurement Information System Short-Forms (PROMIS-SF) assessed global mental health, emotional distress (anxiety, depression, anger), psychological strengths (self-efficacy, emotional regulation, meaning and purpose), and sleep-related health (fatigue, sleep-related impairment). Student's t-tests compared the sample's mean T-scores to US population norms. Pearson's correlation coefficient (ρ) examined associations betwe

SUBMITTER: McLachlan LM 

PROVIDER: S-EPMC11343666 | biostudies-literature | 2024 Sep-Oct

REPOSITORIES: biostudies-literature