From many voices, one question: Community co-design of a population-based qualitative cancer research study.

ABSTRACT:

Purpose

This study formed the development stage of a population-based survey aiming to: (i) understand the needs and experiences of people affected by cancer in Queensland, Australia and (ii) recruit a pool of participants for ongoing cancer survivorship research. The current study aimed to co-design and test a single qualitative survey question and study invitation materials to maximise acceptability of, and participation in, the survey and future research.

Methods

Fifty-two community members, including cancer survivors and caregivers, participated across 15 co-design workshops and 20 pretest interviews. During workshops, participants generated and refined ideas for an open-ended survey question and provided feedback on a study invitation letter. The use of a single, open-e

SUBMITTER: Ayre SK 

PROVIDER: S-EPMC11346942 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature