End-of-life experiences in individuals with dementia with Lewy bodies and their caregivers: A mixed-methods analysis.

ABSTRACT:

Background

Dementia with Lewy bodies (DLB) is one of the most common degenerative dementias, but research on end-of-life experiences for people with DLB and their caregivers is limited.

Method

Dyads of individuals with moderate-advanced DLB and their primary informal caregivers were recruited from specialty clinics, advocacy organizations, and research registries and followed prospectively every 6 months. The current study examines results of caregiver study visits 3 months after the death of the person with DLB. These visits included the Last Month of Life survey, study-specific questions, and a semi-structured interview querying end-of-life experiences.

Results

Individuals with DLB (n = 50) died 3.24 ± 1.81 years after diagnosis, typically of disease-related complic

SUBMITTER: Wollney E 

PROVIDER: S-EPMC11361593 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature