Quality of life of families and siblings of children with cerebral palsy treated at a reference neurorehabilitation center in Brazil.

ABSTRACT:

Objectives

To investigate the associations between caregivers' burden, family quality of life (QoL), and siblings' QoL in Brazilian families of children with cerebral palsy, and to analyze siblings' QoL using as a parameter the QoL of typically developed Brazilian children.

Methods

It was a cross-sectional study. The 212 families, 212 caregivers and 131 siblings completed the Family Quality of Life Scale, Burden Interview, and KIDSCREEN-27 Child and Adolescent Version and Parents Version questionnaires at a neurorehabilitation center in southeast Brazil. Univariable and multivariable models were used.

Results

Family QoL significantly worsened as caregivers' burden increased (95 % CI -0.66 to -0.38). Caregivers' burden was significantly lower with increasing family QoL

SUBMITTER: Dias BLS 

PROVIDER: S-EPMC11361884 | biostudies-literature | 2024 Sep-Oct

REPOSITORIES: biostudies-literature