Exploring Data Collection Priorities of Community Partners in Early Psychosis Care.

ABSTRACT:

Objective

Learning health care networks can significantly improve the effectiveness, consistency, and cost-effectiveness of care delivery. As part of a data harmonization process, incorporation of the perspectives of community partners to maximize the relevance and utility of the data is critical.

Methods

A mixed-methods focus group study was conducted with early psychosis program providers, leadership, service users, and family members to explore their priorities regarding data collection in early psychosis care. Focus group transcripts were analyzed through thematic analysis.

Results

Twenty-two focus groups comprising 178 participants were conducted across 10 early psychosis programs. Participants considered functioning, quality of life, recovery, and symptoms of ps

SUBMITTER: Savill M 

PROVIDER: S-EPMC11366502 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature