Patient experiences and strategies for coping with SLE: A qualitative study.

ABSTRACT:

Objective

This study explored challenges that patients with systemic lupus erythematosus (SLE) and childhood-onset SLE (cSLE) face to identify modifiable influences and coping strategies in patient experiences.

Methods

Participants were recruited from two academic medical centers through a Lupus Registry of individuals ≥18 years old and ≥4 1997 ACR classification criteria for SLE and a centralized data repository of cSLE patients, and participated in three focus groups. Transcripts were coded thematically and adjudicated by two independent reviewers.

Results

Thirteen adults, 7 (54%) with cSLE, participated in focus groups. Themes were categorized into two domains: (1) challenges with SLE diagnosis and management; and (2) patient coping strategies and modifiable factor

SUBMITTER: Case S 

PROVIDER: S-EPMC11376213 | biostudies-literature | 2021 Aug

REPOSITORIES: biostudies-literature