A scoping review of health literacy in rare disorders: key issues and research directions.

ABSTRACT:

Background

The ability to find, understand, appraise and utilise health information is crucial among individuals living with rare disorders. The aim of this study was to give a comprehensive overview of the literature on health literacy in adult persons with rare disorders.

Methods

We applied a scoping review methodology and performed a systematic search in 2021 in bibliographic databases. Searches were conducted in Medline (Ovid), Embase (Ovid), PsycInfo (Ovid), CINAHL (ebsco), and ERIC (Ovid). References were sorted and evaluated for inclusion using EndNote and Covidence. This review was guided by the question "What are the characteristics of research on health literacy in rare disorders?"

Results

The database searches yielded 75 eligible reports. A total of 6223 in

SUBMITTER: Stenberg U 

PROVIDER: S-EPMC11380335 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature