Evaluating implementation of a hospital-based cancer registry to improve childhood cancer care in low- and middle-income countries.

ABSTRACT:

Purpose

Cancer is a leading cause of global childhood mortality, affecting 400,000 children annually. While treatable with modern therapies, children living in low- and middle-income countries (LMICs) have limited access to care and lower survival rates. Hospital-based cancer registries (HBCRs) collect detailed patient information to critically evaluate and evolve care. The St. Jude Global Childhood Cancer Analytics Resource and Epidemiological Surveillance System (SJCARES) is a cloud-based HBCR network facilitating quality data collection of pediatric cancer. Wide variation in the success of implementation has warranted further research into the implementation approach, to create a sustainable and adaptable HBCR in LMICs.

Methods

Seven of 89 sites using the SJCARES registry

SUBMITTER: Maas MR 

PROVIDER: S-EPMC11382012 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature