Ontology highlight
ABSTRACT: Background
Over the last decade attention has grown to give patients and next of kin (P/N) more substantial roles in adverse event investigations. Adverse event investigations occur after adverse events that resulted in death or severe injury. Few studies have focused on patient perspectives on their involvement in such investigations. The present study sets out to investigate how P/N and patient representatives (client councils and the Patient Federation Netherlands) view the involvement of P/N in adverse event investigations, particularly whether and why they want to involved, and how they want to shape their involvement.Methods
The study features qualitative data on three levels: interviews with P/N (personal), focus groups with representatives of client councils (instit
SUBMITTER: Dijkstra-Eijkemans RI
PROVIDER: S-EPMC11385834 | biostudies-literature | 2024 Sep
REPOSITORIES: biostudies-literature