Assessing Participants' Experiences with Vitiligo from Patient Interviews.

ABSTRACT:

Introduction

Vitiligo is an autoimmune disease, causing skin depigmentation. Individuals with vitiligo incur substantial psychosocial burden and have expressed frustration with their treatments. Here, we describe the burden of vitiligo and opinions on what constitutes meaningful change among participants of two qualitative interview studies.

Methods

Qualitative interviews were conducted with a subgroup of adolescent and adult participants with vitiligo from two pivotal phase 3 clinical trials of ruxolitinib cream (Study 1) and a real-world panel (Study 2). Participants were asked about their disease burden, treatment goals, importance of facial/body improvement (treatment satisfaction: scale range 0-10), and meaningfulness of change (yes/no).

Results

A total of 36 par

SUBMITTER: Pandya AG 

PROVIDER: S-EPMC11393220 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature