Chronically ill patients' perspectives on support services and activities of patient organizations.

ABSTRACT:

Background

Patient Organizations (POs) are an important support factor in helping chronically ill patients cope with their illness. Patient involvement in the management of their disease helps to achieve the best possible care for the patient, streamline the work of healthcare providers, shape healthcare policy, and even influence the structures of healthcare systems. The perspective of chronically ill patients on the activities and services provided by patient organizations has not been evaluated yet. This study aimed to identify and map the services and activities of all types of non-profit patient organizations from the perspective of chronically ill patients so that they can be integrated as an integral part of the healthcare system.

Methods

Nineteen services and activit

SUBMITTER: Zigdon A 

PROVIDER: S-EPMC11403880 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature