Lessons learned from the MOMENT study on how to recruit and retain a target population online, across borders, and with automated remote data collection.

ABSTRACT: Increasingly, studies use social media to recruit, enroll, and collect data from participants. This introduces a threat to data integrity: efforts to produce fraudulent data to receive participant compensation, e.g., gift cards. MOMENT is an online symptom-monitoring and self-care study that implemented safeguards to protect data integrity. Facebook, Twitter, and patient organizations were used to recruit participants with chronic health conditions in four countries (USA, Italy, The Netherlands, Sweden). Links to the REDCap baseline survey were posted to social media accounts. The initial study launch, where participants completed the baseline survey and were automatically re-directed to the LifeData ecological momentary assessment app, was overwhelmed with fraudulent responses. In respons

SUBMITTER: Belfiglio A 

PROVIDER: S-EPMC11404800 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature