Assessment of joint health in patients receiving prophylaxis for haemophilia A: a cross-sectional survey in five European countries.

ABSTRACT:

Objectives

To evaluate joint health, pain and health-related quality of life (HRQoL) in patients with moderate/severe haemophilia A in Europe.

Design

Multinational, cross-sectional survey, with retrospective data collection. Data were taken from the Adelphi Real World Haemophilia Disease Specific Programme Wave II, using surveys completed by physicians and patients between February 2020 and May 2021.

Setting

Haematologists/haemato-oncologists and their patients in France, Germany, Italy, Spain and the UK.

Participants

Males aged ≥18 years with moderate or severe haemophilia A (baseline clotting factor level ≤5%), without existing inhibitors and currently receiving prophylaxis. Patients were grouped into those with or without haemophilia-affected joints (HAJs) b

SUBMITTER: De la Corte-Rodriguez H 

PROVIDER: S-EPMC11409238 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature