Engagement of patients and the public in personalised prevention in Europe using genomic information: a scoping review.

ABSTRACT:

Introduction

Personalised prevention using genomic information requires active involvement from patients and the public, who should be well-informed and empowered to make healthcare decisions that reflect their personal values. We aimed to map engagement practises, and assess the extent and types of engagement methods used in the field of personalised prevention of common chronic conditions using genomic information.

Methods

A scoping review on selected literature (in Medline, Embase, Scopus, Web of Science, APA PsycINFO, and IBSS) from 2015 to 2023 was performed. Articles included described practises of patient and public engagement in personalised prevention and genomics conducted in Europe focusing on cancer, cardiovascular diseases and neurodegenerative disorders. Engage

SUBMITTER: Kreeftenberg LL 

PROVIDER: S-EPMC11427883 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature