Returning individual research results to participants: Values, preferences, and expectations.

ABSTRACT:

Background/objective

Disclosing individual research results to participants is not standard practice. The return of individual research results to participants may increase recruitment, retention, and engagement in research. This study's objective was to explore the preferences, expectations, and experiences of research participants receiving individual research results.

Methods

A mixed-methods approach, consisting of semi-structured interviews and a health literacy assessment, was used with participants enrolled in a cohort study. The interviews were analyzed to produce an understanding of current experiences. Using descriptive analyses, responses were compared to identify alignments and divergences among participants.

Results

Forty-three English-speaking and 16 Span

SUBMITTER: Kent DA 

PROVIDER: S-EPMC11428116 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature