Research priorities for progressive pulmonary fibrosis in the UK.

ABSTRACT:

Introduction

Health research bodies recommend patient involvement and engagement in research and healthcare planning, although their implementation is not yet widespread. This deficiency extends to progressive pulmonary fibrosis (PPF), where crucial aspects remain unknown, including causal mechanisms, curative treatments and optimal symptom management. This study addresses these gaps by seeking stakeholders' perspectives to guide research and treatment directions.

Method

A priority-setting partnership was established to explore stakeholders' priorities in the diagnosis, treatment, management and care of PPF, including idiopathic pulmonary fibrosis which is the archetypal PPF. Stakeholders included people living with PPF, their carers, relatives and healthcare professionals i

SUBMITTER: Fabbri L 

PROVIDER: S-EPMC11428979 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature