"It's just getting the word out there": Self-disclosure by people with young-onset dementia.

ABSTRACT:

Background

Sharing a dementia diagnosis with others is a prerequisite to accessing important support for social, cognitive, and physical activity. However, due to the stigma associated with dementia, individuals may be hesitant to disclose their diagnosis. Despite the importance of this issue, there is limited research on personal experiences with sharing one's diagnosis. This study explored how people with young-onset dementia disclose their diagnosis to other people, also known as self-disclosure, and how time affects self-disclosure.

Methods

We conducted an exploratory qualitative study, using semi-structured interviews with nine people with young-onset dementia living in the United Kingdom (UK). A narrative approach to analysis was applied, focusing on understanding the

SUBMITTER: Kohl G 

PROVIDER: S-EPMC11441687 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature