Self-perceived quality of life, cognitive and behavioural impairment in amyotrophic lateral sclerosis.

ABSTRACT:

Background

Self-perceived quality of life (QoL) is important in amyotrophic lateral sclerosis (ALS). Although caregiver burden and strain have been related to cognitive and behavioural impairment, there has been no comprehensive research looking at these impairments and how they may influence self-perceived QoL subdomains.

Aims

To explore how cognitive and behavioural impairment are related to different areas of self-perceived QoL using disease-specific measures.

Methods

This was a quantitative, cross-sectional, observational cohort study, utilising existing specialist ALS clinic data. Clinical and demographic variables were available as well as multidimensional measures, ALS-specific QoL Short Form (ALSsQoL-SF) results and the data from the Edinburgh Cognitive and Be

SUBMITTER: Radakovic R 

PROVIDER: S-EPMC11446980 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature