Communicating the diagnosis of a hematological neoplastic disease to patients' minor children: a multicenter prospective study.

ABSTRACT:

Background

When a hematological malignancy is diagnosed, the whole family carries the burden of the disease; parents often try to protect minor children from suffering by avoiding communication about their disease. Since 2009, patients with minors at the Adult Hematology Division at San Gerardo Hospital (Monza) can take part in the "Emanuela Project": children can visit parents and talk with psychologists and hematologists, who explain the disease through simple metaphors.

Materials and methods

The EMY STUDY aimed to evaluate the impact of illness-related communication on children's behavior, comparing Monza's experience with other Hematology Units, where the communication is delegated to parents or psychological support. Questionnaires exploring the children's main behavior

SUBMITTER: Manghisi B 

PROVIDER: S-EPMC11449074 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature