The experiences and decision making of patients with incurable cancer and health literacy difficulties.

ABSTRACT:

Objective

Shared decision making is important when decisions are preference sensitive, as in incurable cancer. A prerequisite for shared decision making is health literacy, which is essential to facilitate good understanding of an individual's current situation, the decision to be made, and the options available to them. This study sought to learn about the challenges for shared decision making faced by patients with incurable cancer and health literacy difficulties.

Methods

Semi-structured telephone and video interviews were used to collect data on participants' experiences, decision making, and challenges faced. Study procedures followed health literacy principles, with information offered in various formats to suit individuals' preferences, the use of a verbal consent pro

SUBMITTER: Holden CE 

PROVIDER: S-EPMC11449316 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature