Perspectives on advance research directives from individuals with mild cognitive impairment and family members: a qualitative interview study.

ABSTRACT:

Background

Advance research directives (ARDs) provide a promising way to involve individuals with mild cognitive impairment (MCI) in research decisions before they lose the capacity to consent. At the same time, the views of people with MCI on ARDs are underexplored. This study assesses the perceptions of people with MCI and family members on the benefits and challenges associated with ARDs.

Aims

The aim of this study was to investigate the perspectives of individuals with MCI and family members of individuals with MCI on ARDs. We focus specifically on willingness to participate in nontherapeutic research, understanding of ARDs and the ethical considerations involved.

Methods

Thirteen open-ended, face-to-face interviews were conducted using a semi-structured format. S

SUBMITTER: Gieselmann A 

PROVIDER: S-EPMC11450480 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature