Epidemiology, patient journey and unmet needs related to hemophilia in Brazil: a scoping review with evidence map.

ABSTRACT:

Introduction

Brazil is one of the countries with the largest population of people with hemophilia (PwH) worldwide. In this scoping review, we aim to investigate the Brazilian context for hemophilia regarding three predefined concepts: (i) clinical-epidemiological profile, (ii) burden of disease and (iii) patient journey and unmet needs.

Methods

Three questions in each concept guided the screening of references retrieved by systematic searches carried out in MEDLINE, LILACS and the Digital Library of Theses and Dissertations. Quantitative and qualitative studies conducted in Brazil from 2002 onwards were assessed for eligibility.

Main results

Ninety-two studies were included. A total of 66 studies addressed the concept "Clinical-epidemiological profile", 31 investigate

SUBMITTER: Schneider NB 

PROVIDER: S-EPMC11451346 | biostudies-literature | 2024 Oct-Dec

REPOSITORIES: biostudies-literature