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Dataset Information

Policy, system and service design influence on healthcare inequities for people with end-of-life chronic obstructive airways disease, their support people and health professionals.


ABSTRACT:

Background

People with end-of-life chronic obstructive pulmonary disease (COPD) experience debilitating physical limitations, with a high mortality rate. Our research has shown health system design and delivery leads to inequitable outcomes. Enabling people with end-of-life COPD, their support people, and health professionals to partner in setting the agenda for resource allocation may inform health service improvement.

Design

Qualitative methodology utilising focus groups including patients, family, friends, informal support people, health care workers and professionals.

Methods

The analysis, utilising critical theory and Actor-Network theory, positioned people with severe COPD, their support people and health professionals as experts in end-of-life care. Analyses tr

SUBMITTER: Landers A 

PROVIDER: S-EPMC11457488 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature