Community-based palliative care needs and barriers to access among cancer patients in rural north India: a Participatory action research.

ABSTRACT:

Background

This paper aimed to explore the palliative care (PC) needs and barriers to access among cancer patients in a rural region of North India with a high cancer burden.

Methods

A Participatory action research (PAR) approach was employed. Situational assessment, community sensitization workshops (CSWs) and door-to-door surveys were planned, conducted and developed over three PAR cycles. A parallel convergent mixed-methods approach was adopted wherein the quantitative data from door-to-door surveys and qualitative data from CSWs and investigator field notes were collected and analyzed to provide a comprehensive understanding of PC needs and barriers to access. Descriptive statistics and thematic analysis were used.

Results

A total of 27 CSWs involving 526 stakehol

SUBMITTER: Gupta M 

PROVIDER: S-EPMC11462709 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature