Patient and public involvement in an evidence synthesis project: description of and reflection on involvement.

ABSTRACT:

Background

We conducted an NIHR-funded evidence synthesis project, reviewing evidence relating to interventions for perceptual disorders following stroke. This related paper describes how people with lived experience of stroke-related perceptual disorders contributed to and influenced the project, and identifies lessons for future review projects.

Methods

We planned our patient and public involvement and engagement (PPIE) activities within a study protocol, described according to the domains of the ACTIVE framework; these were founded on principles for good practice in PPIE. Activities occurred across the lifespan of the project, consisting primarily of group discussions and voting to determine if there was consensus. To assess impact and individual experiences, we sought fe

SUBMITTER: Thomson K 

PROVIDER: S-EPMC11462723 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature