Uncertainties of healthcare professionals and informal caregivers in rare diseases: A systematic review.

ABSTRACT: Uncertainties, defined as metacognitive awareness of ignorance, are an essential part of medicine. Consequently, healthcare professionals (HCPs) as well as informal caregivers face them inevitably. Depending on the interpretation of uncertainties and the existence of available resources to cope with them, uncertainties might have serious consequences. Studies showed higher burnout-rates and reduced psychosocial well-being of HCPs and informal caregivers. Especially rare diseases are linked with a variety of uncertainties, as knowledge about specific diseases is often limited which might result in a higher burden of both groups. This review aimed at summarizing studies dealing with HCPs' and informal caregivers' uncertainties in the context of rare diseases. We searched five databases and s

SUBMITTER: Zybarth D 

PROVIDER: S-EPMC11471567 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature