Methods and approaches to facilitate inclusion of the views, perspectives and preferences of people with moderate-to-severe dementia in research: A narrative systematic review.

ABSTRACT:

Background

The perspectives of people with moderate-to-severe dementia are rarely directly elicited in research studies.

Objectives

This systematic review will explore methods and approaches for including the perspectives and preferences of people with moderate-to-severe dementia in research.

Methods

AgeLine, CINAHL, Embase, PsycINFO, PubMed, Social Policy and Practice and Web of Science were searched until June 16 2022. Study quality was assessed using the 16-item Quality Assessment Tool. We described specific communication tools, reviewed the evidence for their effectiveness and considered their strengths and limitations. We examined the more general communication skills and techniques applied to support the use of these tools using thematic synthesis. The review pr

SUBMITTER: Collins R 

PROVIDER: S-EPMC11475515 | biostudies-literature | 2024 Jan

REPOSITORIES: biostudies-literature