Perceptions about dementia clinical trials among underrepresented populations: a nationally representative survey of U.S. dementia caregivers.

ABSTRACT:

Background

The research community has historically failed to enroll diverse groups of participants in dementia clinical trials. A unique aspect of dementia care research is the requirement of a study partner, who can attest to the care recipient's clinical and functional capacity. The aim of this study is to assess racial and ethnic differences and the importance of various trial considerations among dementia caregivers, in their decision to participate in clinical research as study partners.

Method

We embedded a vignette about a hypothetical dementia clinical trial in a nationally representative survey of U.S. dementia caregivers, oversampling non-Hispanic Black and Hispanic caregivers. Dementia caregivers were asked about their willingness to participate in the trial with

SUBMITTER: Leggins B 

PROVIDER: S-EPMC11476697 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature