Cutaneous Manifestations in Patients with Dermatomyositis, Are They Only Skin Deep?

ABSTRACT:

Background

Dermatomyositis (DM) is a rare and severely debilitating autoimmune disease that can affect children and adults; however, there is little understanding of the patient-reported experience and uncertainty around validated clinical outcomes assessments (COAs) that could measure changes in the condition during clinical trials of new treatments.

Objectives

The aim of this study was to understand the patient experience of DM, with a focus on its cutaneous manifestations, to describe the patient experience and determine the suitability of existing COA measures.

Methods

Adult (≥ 18 years) patients (N = 28) with severe active cutaneous manifestations of DM were interviewed. In the 90-min interviews, open-ended questions and probes were used to elicit descriptions of

SUBMITTER: McKee S 

PROVIDER: S-EPMC11480284 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature