Myasthenia Gravis: utilising cross-platform quantitative content analysis to uncover and validate unmet needs.

ABSTRACT:

Background

Recent years have seen a rapid growth in the number of online health communities targeted at patients with long-term conditions. Myasthenia Gravis (MG) is a rare neurological disease for which such communities have not been analysed before. The aim of this study was to better understand the needs of the MG population through the collation and categorisation of questions that users of MG social media were asking fellow users on these platforms.

Methodology

Systematic observation of four MG Facebook groups was conducted over a 2-month period. Groups were selected for analysis based on the following systematic criteria: Language (English), Membership (≥ 5,000 members), group activity (≥ 2 posts per week), target audience (general MG population) and researcher engagem

SUBMITTER: Legg D 

PROVIDER: S-EPMC11483605 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature