Qualitative genomic research with Indigenous peoples: a scoping review of participatory practice.

ABSTRACT:

Introduction

Indigenous peoples and perspectives are under-represented within genomic research. Qualitative methods can help redress this under-representation by informing the development of inclusive genomic resources aligned with Indigenous rights and interests. The difficult history of genomic research with Indigenous peoples requires that research be conducted responsibly and collaboratively. Research guidelines offer structuring principles, yet little guidance exists on how principles translate into practical, community-led methods. We identified the scope and nature of participatory practice described in published qualitative genomic research studies with Indigenous peoples.

Methods

We performed a search of PubMed, CINAHL, Embase, Scopus and the Bibliography of Indigen

SUBMITTER: Ehman M 

PROVIDER: S-EPMC11487801 | biostudies-literature | 2024 Oct

REPOSITORIES: biostudies-literature