From a Single Voice to Diversity: Reframing 'Representation' in Patient Engagement.

ABSTRACT: There has been a growing emphasis on consumer representation in the development of health policy, services, research, and education. Existing literature has critiqued how discourses of representativeness can disempower consumers working in health systems. The context of the current study is consumer engagement in the development of COVID-19 triage policy and practice in a local health service. Consumer engagement has often been an afterthought in the COVID response, with few examples of consumers in agenda-setting or decision-making roles. In the Australian Capital Territory, 26 consumer, carer, and community groups worked together with academics and clinicians to develop these principles. Interviews were conducted with stakeholders (including consumers, clinicians, and other health profes

SUBMITTER: Scholz B 

PROVIDER: S-EPMC11487870 | biostudies-literature | 2024 Sep

REPOSITORIES: biostudies-literature