Views of Genetic Testing for Autism Among Autism Self-Advocates: A Qualitative Study.

ABSTRACT:

Background

Autism self-advocates' views regarding genetic tests for autism are important, but critical questions about their perspectives arise.

Methods

We interviewed 11 autism self-advocates, recruited through autism self-advocacy websites, for 1 h each.

Results

Interviewees viewed genetic testing and its potential pros and cons through the lens of their own indiviudal perceived challenges, needs and struggles, especially concerning stigma and discrimination, lack of accommodations and misunderstandings from society about autism, their particular needs for services, and being blamed by others and by themselves for autistic traits. Their views of genetic testing tended not to be binary, but rather depended on how the genetic test results would be used. Intervi

SUBMITTER: Klitzman R 

PROVIDER: S-EPMC11491495 | biostudies-literature | 2024 Oct-Dec

REPOSITORIES: biostudies-literature