Community-Engaged Recommendations for Empowering People Living With Dementia to be Research Collaborators.

ABSTRACT: As cases of Alzheimer's disease and related dementias (ADRD) increase worldwide, research design has placed additional emphasis on social and behavioral factors that affect ADRD symptomatology and quality of life. Despite this, few studies have incorporated people living with ADRD as research partners. We propose 5 community-engaged recommendations for incorporating people living with ADRD into future research as full collaborators. The proposed recommendations center the experiences of people living with ADRD as crucial contributions to scientific inquiry. The guidelines are based on experiences at a 2-day "Empowering Partnerships" workshop in 2019; post workshop activity continued through 2021 with ongoing collaborations, analysis, and reflective practice. The workshop and subsequent con

SUBMITTER: Griffith EE 

PROVIDER: S-EPMC11491516 | biostudies-literature | 2024 Apr

REPOSITORIES: biostudies-literature