The Caregiver Burden of Helmet Therapy following Endoscopic Strip Craniectomy: A Phenomenological Qualitative Study.

ABSTRACT:

Introduction

This cohort study aimed to elucidate the caregiver burden of helmet therapy (HT), following endoscopic strip craniectomy (ESC) to treat craniosynostosis, in an effort to inform clinicians and future caregivers navigating this therapeutic option.

Methods

Fourteen caregivers of children with positional plagiocephaly (6) and craniosynostosis treated by ESC (8) undergoing HT at a single center were recruited via convenience sampling. Using a phenomenological qualitative approach, semi-structured interviews were conducted to understand the experience of HT for caregivers. Data collection and analysis were iterative and conducted until thematic saturation was reached.

Results

Emerging themes revealed five domains of caregiver burden: emotional, cognitive, physi

SUBMITTER: Ebeye T 

PROVIDER: S-EPMC11493373 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature